"Title","Author","Summary","Body","Date posted","Country","Ongoing","Start Date","End Date","","Staff Type","","","","","","","","","Facilitation?"
"GAMBA patient and citizen panels","ScienceDialogue.de","Patient and Citizen Panels in three countries
<!--break-->
A key element of this project is the involvement of members of society into the research on innovative treatments of arthritis. We will set up a two-way dialogue at eye level between patients / citizens and leading European scientists in three European countries (Germany, Switzerland, Ireland). In the so-called patient and citizen panels (about 3 to 4 days) participants are first introduced to the field of innovative research on arthritis through expert presentations and a hearing with experts selected by the participants. In a second step, participants negotiate about this input and then compile patient-/ citizen-reports supported by independent facilitators. Therefore, the main objective of this work package is to discuss the chances, risks and ethical aspects of innovative arthritis treatments with lay people and to develop communication strategies to provide clinics, interested companies as well as the media and a broader public with balanced, professionally developed and scientifically sound information.
<!--break-->
Two main questions will be answered by the dialogue measures:
<!--break-->
1)    What do lay people (patients / citizens) want to know about GAMBA? What are their associations with GAMBA? What specific topics are they interested in from their special point of view as concerned patients / interested citizens?<!--break-->
2)    What are lay people’s recommendations to the scientific world, to regulators, industry and media regarding the chances, risks, ethical/social aspects of GAMBA?
","Problems and Purpose History Originating Entities and Funding Participant Selection Deliberation, Decisions, and Public Interaction Influence, Outcomes, and Effects Analysis and Criticism Secondary Sources External Links Notes ","Tue, 07/03/2012 - 04:16","Germany","Yes","","","","","Discussion, Dialogue, or Deliberation","International Organization","Consultation (i.e. to advise decision makers), Raise public awareness","Open to all with targeted recruitment, Random Selection, Appointment","Citizens' Jury","International","Academic Institution","","Yes"