Data

General Issues
Science & Technology
Specific Topics
Biomedical Research & Development
Collections
OECD Project on Representative Deliberative Processes
Location
Denmark
Scope of Influence
National
Links
Consensus Conference on Gene Therapy
OECD Project Page for Innovative Citizen Participation
Start Date
End Date
Ongoing
No
Time Limited or Repeated?
A single, defined period of time
Purpose/Goal
Make, influence, or challenge decisions of government and public bodies
Develop the civic capacities of individuals, communities, and/or civil society organizations
Approach
Consultation
Spectrum of Public Participation
Consult
Total Number of Participants
11
Open to All or Limited to Some?
Limited to Only Some Groups or Individuals
Recruitment Method for Limited Subset of Population
Stratified Random Sample
General Types of Methods
Deliberative and dialogic process
General Types of Tools/Techniques
Facilitate dialogue, discussion, and/or deliberation
Recruit or select participants
Propose and/or develop policies, ideas, and recommendations
Specific Methods, Tools & Techniques
Consensus Conference
Deliberation
Legality
Yes
Facilitators
Yes
Face-to-Face, Online, or Both
Face-to-Face
Types of Interaction Among Participants
Discussion, Dialogue, or Deliberation
Information & Learning Resources
Expert Presentations
Communication of Insights & Outcomes
Public Report
Primary Organizer/Manager
The Danish Board of Technology Foundation
Type of Organizer/Manager
Non-Governmental Organization
Funder
Budget of The Danish Board of Technology
Type of Funder
Non-Governmental Organization
Staff
No
Evidence of Impact
Yes
Types of Change
Changes in people’s knowledge, attitudes, and behavior
Implementers of Change
Elected Public Officials
Formal Evaluation
Yes

CASE

Danish Consensus Conference on Gene Therapy

Gene Therapy DNA – Credit: koto_feja | Credit: Getty Images/iStockphoto
October 23, 2020 Jaskiran Gakhal, Participedia Team
September 12, 2020 Joyce Chen
General Issues
Science & Technology
Specific Topics
Biomedical Research & Development
Collections
OECD Project on Representative Deliberative Processes
Location
Denmark
Scope of Influence
National
Links
Consensus Conference on Gene Therapy
OECD Project Page for Innovative Citizen Participation
Start Date
End Date
Ongoing
No
Time Limited or Repeated?
A single, defined period of time
Purpose/Goal
Make, influence, or challenge decisions of government and public bodies
Develop the civic capacities of individuals, communities, and/or civil society organizations
Approach
Consultation
Spectrum of Public Participation
Consult
Total Number of Participants
11
Open to All or Limited to Some?
Limited to Only Some Groups or Individuals
Recruitment Method for Limited Subset of Population
Stratified Random Sample
General Types of Methods
Deliberative and dialogic process
General Types of Tools/Techniques
Facilitate dialogue, discussion, and/or deliberation
Recruit or select participants
Propose and/or develop policies, ideas, and recommendations
Specific Methods, Tools & Techniques
Consensus Conference
Deliberation
Legality
Yes
Facilitators
Yes
Face-to-Face, Online, or Both
Face-to-Face
Types of Interaction Among Participants
Discussion, Dialogue, or Deliberation
Information & Learning Resources
Expert Presentations
Communication of Insights & Outcomes
Public Report
Primary Organizer/Manager
The Danish Board of Technology Foundation
Type of Organizer/Manager
Non-Governmental Organization
Funder
Budget of The Danish Board of Technology
Type of Funder
Non-Governmental Organization
Staff
No
Evidence of Impact
Yes
Types of Change
Changes in people’s knowledge, attitudes, and behavior
Implementers of Change
Elected Public Officials
Formal Evaluation
Yes
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From September 22nd to 25th, 1995, the 11 members of the Consensus Conference on Gene Therapy met to obtain layman's evaluations of the perspectives on gene therapy and whether the treatment should be allowed in Denmark.

Problems and Purpose

Background History and Context

Organizing, Supporting, and Funding Entities

Participant Recruitment and Selection

Methods and Tools Used

What Went On: Process, Interaction, and Participation

Influence, Outcomes, and Effects

Analysis and Lessons Learned

See Also

Danish Consensus Conference: Testing Our Genes

References

External Links

Notes

Data was sourced from OECD (2020), Innovative Citizen Participation and New Democratic Institutions: Catching the Deliberative Wave, OECD Publishing, Paris, https://doi.org/10.1787/339306da-en. 

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