Data

General Issues
Health
Science & Technology
Specific Topics
Health Care Reform
Collections
OECD Project on Representative Deliberative Processes
Location
France
Scope of Influence
National
Links
The POLITICIZE Dataset of 105 Deliberative Mini-Publics (DMPs) in Europe, 2000–2020
The POLITICIZE Project
Peut-on délibérer du big data en santé sans controverser ?
Avis de l’atelier Citoyen: Big Data en Santé
Atelier Citoyen Big data & Santé Membres: du comité de pilotage
Le Dispositif d'Atelier Citoyen: intégrer l’avis des citoyens dans la réflexion sur le big data en santé
Atelier citoyen: Big data en santé
Start Date
End Date
Ongoing
No
Time Limited or Repeated?
A single, defined period of time
Purpose/Goal
Make, influence, or challenge decisions of government and public bodies
Develop the civic capacities of individuals, communities, and/or civil society organizations
Approach
Consultation
Spectrum of Public Participation
Consult
Total Number of Participants
17
Open to All or Limited to Some?
Limited to Only Some Groups or Individuals
Recruitment Method for Limited Subset of Population
Stratified Random Sample
General Types of Methods
Deliberative and dialogic process
General Types of Tools/Techniques
Facilitate dialogue, discussion, and/or deliberation
Recruit or select participants
Propose and/or develop policies, ideas, and recommendations
Specific Methods, Tools & Techniques
Sortition
Civic Lottery
Deliberation
Legality
Yes
Face-to-Face, Online, or Both
Both
Types of Interaction Among Participants
Discussion, Dialogue, or Deliberation
Decision Methods
General Agreement/Consensus
Communication of Insights & Outcomes
Public Report
Public Hearings/Meetings
Type of Organizer/Manager
National Government
Type of Funder
National Government

CASE

French Mini-Public on Healthcare and Big Data

April 17, 2021 Jaskiran Gakhal, Participedia Team
March 22, 2021 Joyce Chen
General Issues
Health
Science & Technology
Specific Topics
Health Care Reform
Collections
OECD Project on Representative Deliberative Processes
Location
France
Scope of Influence
National
Links
The POLITICIZE Dataset of 105 Deliberative Mini-Publics (DMPs) in Europe, 2000–2020
The POLITICIZE Project
Peut-on délibérer du big data en santé sans controverser ?
Avis de l’atelier Citoyen: Big Data en Santé
Atelier Citoyen Big data & Santé Membres: du comité de pilotage
Le Dispositif d'Atelier Citoyen: intégrer l’avis des citoyens dans la réflexion sur le big data en santé
Atelier citoyen: Big data en santé
Start Date
End Date
Ongoing
No
Time Limited or Repeated?
A single, defined period of time
Purpose/Goal
Make, influence, or challenge decisions of government and public bodies
Develop the civic capacities of individuals, communities, and/or civil society organizations
Approach
Consultation
Spectrum of Public Participation
Consult
Total Number of Participants
17
Open to All or Limited to Some?
Limited to Only Some Groups or Individuals
Recruitment Method for Limited Subset of Population
Stratified Random Sample
General Types of Methods
Deliberative and dialogic process
General Types of Tools/Techniques
Facilitate dialogue, discussion, and/or deliberation
Recruit or select participants
Propose and/or develop policies, ideas, and recommendations
Specific Methods, Tools & Techniques
Sortition
Civic Lottery
Deliberation
Legality
Yes
Face-to-Face, Online, or Both
Both
Types of Interaction Among Participants
Discussion, Dialogue, or Deliberation
Decision Methods
General Agreement/Consensus
Communication of Insights & Outcomes
Public Report
Public Hearings/Meetings
Type of Organizer/Manager
National Government
Type of Funder
National Government

The French Mini-Public on Healthcare and Big Data (Atelier citoyen sur le big data en santé) gathered 17 citizens from May 2016 to June 2016. It was held in the framework of a national debate on big data, but not coupled with a legislative process.

Problems and Purpose

Background History and Context

Organizing, Supporting, and Funding Entities

Participant Recruitment and Selection

Participants were randomly selected to achieve representativity with respect to age, gender, and residence. An additional criterion used was computer skills. There was also an exclusion of people with potential conflicts of interest (e.g., all people working in healthcare or in the field of new technologies).

Methods and Tools Used

What Went On: Process, Interaction, and Participation

Influence, Outcomes, and Effects

On June 19, participants released a statement with the summary of their conclusions. This summary report was then presented to the health minister during a conference on July 4, 2016. The debates were weakly publicized and do not seem to have had a strong influence on public opinion or legislative decisions.

Analysis and Lessons Learned

See Also

References

External Links

Notes

This entry is based on the POLITICIZE dataset. More information can be found at the following links:

  • Paulis, Emilien; Pilet, Jean-Benoit; Panel, Sophie; Vittori, Davide; Close, Caroline, 2020, "POLITICIZE Dataset", https://doi.org/10.7910/DVN/Z7X6GT, Harvard Dataverse, V1
  • Pilet J-B, Paulis E, Panel S., Vitori D & Close C. 202X The POLITICIZE Dataset: an inventory of Deliberative Mini-Publics (DMPs) in Europe. European Political Science.