Data

General Issues
Science & Technology
Governance & Political Institutions
Human Rights & Civil Rights
Specific Topics
Biomedical Research & Development
Aging Issues
Collections
The POLITICIZE Project on Deliberative Mini-Publics (DMPs) in Europe
Location
France
Scope of Influence
National
Links
The POLITICIZE Dataset of 105 Deliberative Mini-Publics (DMPs) in Europe, 2000–2020
The POLITICIZE Project
Focus sur le comité citoyen
Rapport de Synthèse du Comité Consultatif National d'Éthique
États généraux (bioéthique)
Etats généraux de la bioéthique : de la naissance à la mort, les affres de l’avis
Start Date
End Date
Ongoing
No
Time Limited or Repeated?
A single, defined period of time
Purpose/Goal
Make, influence, or challenge decisions of government and public bodies
Develop the civic capacities of individuals, communities, and/or civil society organizations
Approach
Consultation
Spectrum of Public Participation
Consult
Total Number of Participants
22
Open to All or Limited to Some?
Limited to Only Some Groups or Individuals
Recruitment Method for Limited Subset of Population
Stratified Random Sample
General Types of Methods
Deliberative and dialogic process
General Types of Tools/Techniques
Facilitate dialogue, discussion, and/or deliberation
Recruit or select participants
Propose and/or develop policies, ideas, and recommendations
Specific Methods, Tools & Techniques
Deliberation
Sortition
Civic Lottery
Legality
Yes
Face-to-Face, Online, or Both
Face-to-Face
Types of Interaction Among Participants
Discussion, Dialogue, or Deliberation
Decision Methods
General Agreement/Consensus
Communication of Insights & Outcomes
Public Report
Type of Organizer/Manager
National Government
Evidence of Impact
Yes
Types of Change
Changes in people’s knowledge, attitudes, and behavior
Implementers of Change
Lay Public
Elected Public Officials

CASE

French Mini-Public in the Framework of a National Debate on Bioethics

April 17, 2021 Jaskiran Gakhal, Participedia Team
March 22, 2021 Joyce Chen
General Issues
Science & Technology
Governance & Political Institutions
Human Rights & Civil Rights
Specific Topics
Biomedical Research & Development
Aging Issues
Collections
The POLITICIZE Project on Deliberative Mini-Publics (DMPs) in Europe
Location
France
Scope of Influence
National
Links
The POLITICIZE Dataset of 105 Deliberative Mini-Publics (DMPs) in Europe, 2000–2020
The POLITICIZE Project
Focus sur le comité citoyen
Rapport de Synthèse du Comité Consultatif National d'Éthique
États généraux (bioéthique)
Etats généraux de la bioéthique : de la naissance à la mort, les affres de l’avis
Start Date
End Date
Ongoing
No
Time Limited or Repeated?
A single, defined period of time
Purpose/Goal
Make, influence, or challenge decisions of government and public bodies
Develop the civic capacities of individuals, communities, and/or civil society organizations
Approach
Consultation
Spectrum of Public Participation
Consult
Total Number of Participants
22
Open to All or Limited to Some?
Limited to Only Some Groups or Individuals
Recruitment Method for Limited Subset of Population
Stratified Random Sample
General Types of Methods
Deliberative and dialogic process
General Types of Tools/Techniques
Facilitate dialogue, discussion, and/or deliberation
Recruit or select participants
Propose and/or develop policies, ideas, and recommendations
Specific Methods, Tools & Techniques
Deliberation
Sortition
Civic Lottery
Legality
Yes
Face-to-Face, Online, or Both
Face-to-Face
Types of Interaction Among Participants
Discussion, Dialogue, or Deliberation
Decision Methods
General Agreement/Consensus
Communication of Insights & Outcomes
Public Report
Type of Organizer/Manager
National Government
Evidence of Impact
Yes
Types of Change
Changes in people’s knowledge, attitudes, and behavior
Implementers of Change
Lay Public
Elected Public Officials

The French Mini-Public in the Framework of a National Debate on Bioethics (Comité citoyen des Etats généraux de la bioéthique) was a public consultation organized by the CCNE. The 22 participants met over 4 weekends from February to May 2018.

Problems and Purpose

Background History and Context

Bioethics laws are revised every 7 years. Since 2011, citizen conferences are mandatory for the revision of these laws.

Organizing, Supporting, and Funding Entities

In anticipation of the revision of the bioethics laws, a public consultation was organized by the CCNE (comité consultative national d’éthique). Its mission was to monitor the public consultation, and to take position on two topics (end of life and physician-assisted suicide, and genomics, especially preconception genetic diagnosis), chosen by the participants themselves upon their first meeting.

Participant Recruitment and Selection

The sample excludes party, union, or NGO workers.

Methods and Tools Used

What Went On: Process, Interaction, and Participation

Influence, Outcomes, and Effects

A report with policy recommendations was issued on June 5, conjointly with the CCNE’s general report on the public consultation (note: the CCNE issued its own policy recommendations in September). In particular, the majority of participants declared themselves favorable to physician-assisted suicide and euthanasia (as in 2013). Most of them also endorsed the use of preconception genetic testing, and the use of genetic data resulting from these tests for scientific research. They disagreed on whether the possibility of preconception diagnosis should be open to everyone or restricted to at-risk populations.

Analysis and Lessons Learned

See Also

References

External Links

Notes

This entry is based on the POLITICIZE dataset. More information can be found at the following links:

  • Paulis, Emilien; Pilet, Jean-Benoit; Panel, Sophie; Vittori, Davide; Close, Caroline, 2020, "POLITICIZE Dataset", https://doi.org/10.7910/DVN/Z7X6GT, Harvard Dataverse, V1
  • Pilet J-B, Paulis E, Panel S.,Vitori D & Close C. 202X The POLITICIZE Dataset: an inventory of Deliberative Mini-Publics (DMPs) in Europe. European Political Science.