Data

General Issues
Health
Science & Technology
Specific Topics
Biomedical Research & Development
Location
Belgique
Scope of Influence
National
Links
Lire dans mes gènes? De questions en questions
End Date
Ongoing
No
Time Limited or Repeated?
A single, defined period of time
Purpose/Goal
Make, influence, or challenge decisions of government and public bodies
Develop the civic capacities of individuals, communities, and/or civil society organizations
Approach
Consultation
Spectrum of Public Participation
Consult
Total Number of Participants
31
Open to All or Limited to Some?
Limited to Only Some Groups or Individuals
Recruitment Method for Limited Subset of Population
Stratified Random Sample
General Types of Methods
Deliberative and dialogic process
General Types of Tools/Techniques
Propose and/or develop policies, ideas, and recommendations
Facilitate dialogue, discussion, and/or deliberation
Specific Methods, Tools & Techniques
Consensus
Consensus Conference
Legality
Yes
Facilitators
Yes
Face-to-Face, Online, or Both
Face-to-Face
Types of Interaction Among Participants
Discussion, Dialogue, or Deliberation
Ask & Answer Questions
Information & Learning Resources
Expert Presentations
Written Briefing Materials
Decision Methods
General Agreement/Consensus
Communication of Insights & Outcomes
Public Report
Type of Organizer/Manager
Philanthropic Organization
Funder
Fondation Roi Baudouin
Type of Funder
Philanthropic Organization
Staff
Yes
Formal Evaluation
No

CASE

"Lire dans mes gènes": Belgian Mini-Public on Biotechnology

February 12, 2021 Jaskiran Gakhal, Participedia Team
February 10, 2021 julien.vrydagh
February 10, 2021 Antonin Lacelle-Webster
February 3, 2021 Antonin Lacelle-Webster
January 7, 2021 julien.vrydagh
December 18, 2020 Jaskiran Gakhal, Participedia Team
December 14, 2020 julien.vrydagh
General Issues
Health
Science & Technology
Specific Topics
Biomedical Research & Development
Location
Belgique
Scope of Influence
National
Links
Lire dans mes gènes? De questions en questions
End Date
Ongoing
No
Time Limited or Repeated?
A single, defined period of time
Purpose/Goal
Make, influence, or challenge decisions of government and public bodies
Develop the civic capacities of individuals, communities, and/or civil society organizations
Approach
Consultation
Spectrum of Public Participation
Consult
Total Number of Participants
31
Open to All or Limited to Some?
Limited to Only Some Groups or Individuals
Recruitment Method for Limited Subset of Population
Stratified Random Sample
General Types of Methods
Deliberative and dialogic process
General Types of Tools/Techniques
Propose and/or develop policies, ideas, and recommendations
Facilitate dialogue, discussion, and/or deliberation
Specific Methods, Tools & Techniques
Consensus
Consensus Conference
Legality
Yes
Facilitators
Yes
Face-to-Face, Online, or Both
Face-to-Face
Types of Interaction Among Participants
Discussion, Dialogue, or Deliberation
Ask & Answer Questions
Information & Learning Resources
Expert Presentations
Written Briefing Materials
Decision Methods
General Agreement/Consensus
Communication of Insights & Outcomes
Public Report
Type of Organizer/Manager
Philanthropic Organization
Funder
Fondation Roi Baudouin
Type of Funder
Philanthropic Organization
Staff
Yes
Formal Evaluation
No

An ethical debate on the use of genes is arising from rapid advances in biotechnology, so the King Baudouin Foundation (FRB) organized a mini-public with 31 citizens, who deliberated on the use of genetic diagnostic tests during three weekends, from January to March 2003.

Problems and Purpose

Background History and Context

Organizing, Supporting, and Funding Entities

Participant Recruitment and Selection

Methods and Tools Used

What Went On: Process, Interaction, and Participation

Influence, Outcomes, and Effects

Analysis and Lessons Learned

See Also

References

External Links

Notes

This entry comes from the following publication:

  • Vrydagh, J., Devillers, S., Talukder, D., Jacquet, V. & Bottin, J. (2020). Les mini-publics en Belgique (2001-2018) : expériences de panels citoyens délibératifs. Courrier hebdomadaire du CRISP, 32(32-33), 5-72. https://doi.org/10.3917/cris.2477.0005;

which can be found here:

  • https://www.cairn.info/revue-courrier-hebdomadaire-du-crisp-2020-32-page-5.htm