Data

General Issues
Health
Governance & Political Institutions
Specific Topics
Health Care Reform
Public Participation
Location
Scotland
United Kingdom
Scope of Influence
National
Links
Recommendations of the Inquiry into Shared Decision-Making in Health
Our Voice Citizens Jury description
Videos
An Our Voice Citizen's Jury on Shared Decision Making
Start Date
End Date
Ongoing
No
Time Limited or Repeated?
A single, defined period of time
Purpose/Goal
Make, influence, or challenge decisions of government and public bodies
Spectrum of Public Participation
Consult
Total Number of Participants
24
Open to All or Limited to Some?
Limited to Only Some Groups or Individuals
Recruitment Method for Limited Subset of Population
stratified
General Types of Methods
Deliberative and dialogic process
General Types of Tools/Techniques
Facilitate dialogue, discussion, and/or deliberation
Recruit or select participants
Propose and/or develop policies, ideas, and recommendations
Specific Methods, Tools & Techniques
Citizens' Jury
Sortition
Deliberation
Legality
Yes
Facilitators
Yes
Facilitator Training
Professional Facilitators
Face-to-Face, Online, or Both
Face-to-Face
Types of Interaction Among Participants
Discussion, Dialogue, or Deliberation
Ask & Answer Questions
Negotiation & Bargaining
Information & Learning Resources
Expert Presentations
Decision Methods
Voting
If Voting
Preferential Voting
Communication of Insights & Outcomes
Public Report
Primary Organizer/Manager
Shared Future CIC
Type of Organizer/Manager
Non-Governmental Organization
Type of Funder
National Government
Staff
Yes
Volunteers
No
Evidence of Impact
Yes
Types of Change
Changes in how institutions operate
Implementers of Change
Elected Public Officials
Appointed Public Servants

CASE

Citizens Jury of Shared Decision Making in Health, Scotland

November 17, 2019 01:01   (UTC +00:00) Jaskiran Gakhal, Participedia Team
September 4, 2019 24:12   (UTC +00:00) Scott Fletcher, Participedia Team
July 4, 2019 14:02   (UTC +00:00) Jez Hall
July 4, 2019 14:02   (UTC +00:00) Jez Hall
July 4, 2019 14:02   (UTC +00:00) Jez Hall
July 4, 2019 14:02   (UTC +00:00) Jez Hall
July 4, 2019 14:02   (UTC +00:00) Jez Hall
July 4, 2019 13:01   (UTC +00:00) Jez Hall
General Issues
Health
Governance & Political Institutions
Specific Topics
Health Care Reform
Public Participation
Location
Scotland
United Kingdom
Scope of Influence
National
Links
Recommendations of the Inquiry into Shared Decision-Making in Health
Our Voice Citizens Jury description
Videos
An Our Voice Citizen's Jury on Shared Decision Making
Start Date
End Date
Ongoing
No
Time Limited or Repeated?
A single, defined period of time
Purpose/Goal
Make, influence, or challenge decisions of government and public bodies
Spectrum of Public Participation
Consult
Total Number of Participants
24
Open to All or Limited to Some?
Limited to Only Some Groups or Individuals
Recruitment Method for Limited Subset of Population
stratified
General Types of Methods
Deliberative and dialogic process
General Types of Tools/Techniques
Facilitate dialogue, discussion, and/or deliberation
Recruit or select participants
Propose and/or develop policies, ideas, and recommendations
Specific Methods, Tools & Techniques
Citizens' Jury
Sortition
Deliberation
Legality
Yes
Facilitators
Yes
Facilitator Training
Professional Facilitators
Face-to-Face, Online, or Both
Face-to-Face
Types of Interaction Among Participants
Discussion, Dialogue, or Deliberation
Ask & Answer Questions
Negotiation & Bargaining
Information & Learning Resources
Expert Presentations
Decision Methods
Voting
If Voting
Preferential Voting
Communication of Insights & Outcomes
Public Report
Primary Organizer/Manager
Shared Future CIC
Type of Organizer/Manager
Non-Governmental Organization
Type of Funder
National Government
Staff
Yes
Volunteers
No
Evidence of Impact
Yes
Types of Change
Changes in how institutions operate
Implementers of Change
Elected Public Officials
Appointed Public Servants
The following entry is missing citations. Please help us verify its content. click for more info

In the autumn of 2018 a representative group of 24 Scottish Citizens gathered over three days to make recommendations on shared decision-making in health and social care.

Problems and Purpose

The Chief Medical Officer’s 2014-15 annual report, Realistic Medicine, called for changes in the way care is delivered in Scotland. This included reducing harm and waste, managing risk better, reducing unnecessary variation and making care more personalised. A key focus was on shared decision making, where decisions about a person’s care or treatment are made jointly between health or social care professionals and the individual, or others supporting their care.

The follow up 2015-16 annual report, Realising Realistic Medicine, set out the Scottish Government’s plans to hold a citizens’ jury which would explore the issues further.

Background History and Context

In partnership with Shared Future CIC the Our Voice team convened an Our Voice Citizens’ Jury which looked at the issue of shared decision-making. A literature review was carried out in May 2017 to find out how juries have been used in Scotland and in other countries.

Work on the jury process started in June 2018. An Oversight Panel – including policy leads from Scottish Government, health and social care as well as service users from third sector organisations – ensured the process was rigorous, and an Implementation Group helped guide the project logistics.

Organizing, Supporting, and Funding Entities

The Scottish Health Council supports healthcare providers to engage meaningfully with people and communities in the design and delivery of services.

Participant Recruitment and Selection

Recruitment was done using a letter sent to a random stratified sample of Scottish Citizens, using a market research company. Recipients were invited to indicate if they wished to take part. Incentives of £100 per day were paid, and over 200 people applied. 24 participants were selected to join the inquiry. All 24 attended all 3 full days of deliberation and many also attended the launch event in February 2019.

Methods and Tools Used

This event used the Citizens' Jury method which brings together a diverse group of between 12 and 25 members of the public to work through an issue, share ideas, and come up with a set of recommendations. The participants are helped by experienced facilitators who ensure everyone has a fair say and that the task is achieved.

What Went On: Process, Interaction, and Participation

In the autumn of 2018 a diverse group of Scottish citizens gathered over 3 days to consider shared decision-making in health and social care. The 24 citizens shared ideas, opinions and experiences and questioned expert commentators before attempting to reach a consensus.

The Our Voice Citizens’ Jury on Shared Decision-making: Final Report documents the process followed and lists, in the participants’ own words, their recommendations on the following question:

What should shared decision making look like and what needs to be done for this to happen?’

The process was based on the model of the citizens' jury. Deliberations were led by experienced facilitators who help make sure everyone has a fair say and that the task is achieved. As part of this deliberative process, there is also input from external commentators who offered particular insight or expertise.

The Citizens’ Jury presented its 13 recommendations at an event in Dundee on 6 February 2019 to the Chief Medical Officer and other key stakeholders in health and social care. These stakeholders discussed the implications of the recommendations, and a summary of the discussions is included in this report.

Influence, Outcomes, and Effects

The Scottish Government committed to carefully consider each of the Jury’s recommendations and reply to them all, either with a commitment to action or an explanation as to why that recommendation could not be taken forward. The Scottish Government's response to the recommendations has been published on the Realistic Medicine website.

On Wednesday 6th February 2019 the Scottish Health Council and Chief Medical Officer’s Realistic Medicine Team launched the Recommendations from Scotland’s Citizens Jury on Shared Decision Making

At this event, held in the Steeple Centre, Dundee participants explained the recommendations and the rationale behind them. Conversations began to look at how the recommendations could be taken forward by changing how services are delivered or to inform policies that encourage people to take an active part in maintaining their health, thereby contributing towards both preventing and treating illness.

The Scottish Government's response to the recommendations was published on the Realistic Medicine website in June 2019.

Analysis and Lessons Learned

An evaluation of the jury process and its impact is in progress.

See Also

Citizens Jury

References

http://scottishhealthcouncil.org/our_voice/citizens_jury.aspx#.XR4B8v57mot

External Links

Final Report: http://scottishhealthcouncil.org/our_voice/idoc.ashx?docid=ebb8c59d-628f-4e1f-a312-917edfab0d93&version=-1

Notes